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Dealing With The Positivity Police

Dear healthy friend, Did you know that I struggle every day with being open and honest with you? As your friend, I want to share myself with you and develop an authentic friendship but my life revolves around my autoimmune disease.  Before you are quick to quote some mindless inspirational thought like, "you have it,… Continue reading Dealing With The Positivity Police

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Fighting Through Flares

I Do Not Look Sick

I do not look sick.  It is a blessing and a curse. Every day is a battle against my body but I look good doing it. This invisible illness, that my friends cannot name or understand, is slowly killing me. Being sick is bad but being invisible while you die is worse. Just like cancer,… Continue reading I Do Not Look Sick

newly diagnosed, Newly Diagonosed, Support, Undiagnosed or Newly Diagnosed

6 Tips For Adjusting To Life With An Autoimmune Disease

Your doctor has finally put a name on the symptoms you've been experiencing and now you have to learn to adjust to life with an autoimmune disease. You've been told a few basics about your newly labeled disease and listened to the announcement that there is no cure.  It may go up or down but… Continue reading 6 Tips For Adjusting To Life With An Autoimmune Disease

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7 Memes of Sjogren’s Syndrome

When I was diagnosed as an autoimmune mess, the first name out of the autoimmune mix they identified was Sjogren's Syndrome.  Fortunately for me, I lived in a very tropical, humid environment.  This actually made the management of my symptoms pretty simple once I got a grasp on them.  However, I have recently moved to… Continue reading 7 Memes of Sjogren’s Syndrome

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What I Learned Loving A Spoonie

I realize that as spoonies, we do a lot of talking about what we need from the people around us to thrive.  I really wanted to take a look at what it is like for those who love us to try and meet those needs.  It's not easy being a spoonie, but it's also not… Continue reading What I Learned Loving A Spoonie

Support, Undiagnosed or Newly Diagnosed

7 Things to Remember When Your Diagnosis Scares You

  Sometimes when I think about my diagnosis, I get really scared.  It is never far from my conscious thought that as an autoimmune mess, my body is constantly moving towards failure.  I don't consider myself a pessimist, but when you face a scary diagnosis there is a harsh reality you cannot help but come… Continue reading 7 Things to Remember When Your Diagnosis Scares You

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Two Words You Should Never Use Around Someone In Pain

Sometimes people can be trying very hard to be supportive or helpful and yet be saying the very things that bring us farther down and hurt us.  I have to believe that most people are well-meaning but unaware of how their choice of words around people who are hurting actually impact them.  I could probably… Continue reading Two Words You Should Never Use Around Someone In Pain

Fighting Through Flares, Support, Uncategorized

Why You Should Never Surprise A Spoonie

I hate surprises.  I mean it, I really do hate them.  All surprises, even really good, ones are awful to me.  I can hardly think of a single time that I really have ever enjoyed not knowing something that directly affected me.  Now, I understand that this is, in part, stemming from my personality. Even… Continue reading Why You Should Never Surprise A Spoonie

Support, Uncategorized

Would You Rather Have A Visible or Invisible Illness?

I was recently asked a very difficult question.  The asker didn't mean for it to be difficult but it became so thought-provoking for me that I had to really take some time before I was sure of my answer.  The question was would you rather have a visible or invisible illness.  This question seems to… Continue reading Would You Rather Have A Visible or Invisible Illness?