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7 Memes of Sjogren’s Syndrome

When I was diagnosed as an autoimmune mess, the first name out of the autoimmune mix they identified was Sjogren's Syndrome.  Fortunately for me, I lived in a very tropical, humid environment.  This actually made the management of my symptoms pretty simple once I got a grasp on them.  However, I have recently moved to… Continue reading 7 Memes of Sjogren’s Syndrome

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What I Learned Loving A Spoonie

I realize that as spoonies, we do a lot of talking about what we need from the people around us to thrive.  I really wanted to take a look at what it is like for those who love us to try and meet those needs.  It's not easy being a spoonie, but it's also not… Continue reading What I Learned Loving A Spoonie

Support, Undiagnosed or Newly Diagnosed

7 Things to Remember When Your Diagnosis Scares You

  Sometimes when I think about my diagnosis, I get really scared.  It is never far from my conscious thought that as an autoimmune mess, my body is constantly moving towards failure.  I don't consider myself a pessimist, but when you face a scary diagnosis there is a harsh reality you cannot help but come… Continue reading 7 Things to Remember When Your Diagnosis Scares You

resources, Support

An Autoimmune Messes Favorite Things

Are you wondering what to buy for that Chronic Illness warrior in your life this holiday season?  Or maybe you realize that after another year of balancing spoons it's time to treat yourself? I've compiled a list of some of my favorite things.  These are all things that I have, or would love to have… Continue reading An Autoimmune Messes Favorite Things

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The Sound of Grief

My autoimmune journey begins long before my diagnosis, as most of ours does.  It goes back to the day my world shattered into a million pieces that could never quite be put back together again.  It goes back to the day of my twenty-first birthday, fourteen years ago today, when my daughter never took her… Continue reading The Sound of Grief

Dealing With Symptoms, Fighting Through Flares, Support, Treatment

Surviving Flu Season When You’re An AUTOIMMUNE MESS

Today is the first day that I have felt decent in weeks.  It all started about four weeks or so ago when I woke up with a pounding headache.  I am, thankfully, not a headache kind of girl.  I figured I had slept with my arm across my forehead and caused myself some crazy sinus… Continue reading Surviving Flu Season When You’re An AUTOIMMUNE MESS

Fighting Through Flares, Support, Uncategorized

Why You Should Never Surprise A Spoonie

I hate surprises.  I mean it, I really do hate them.  All surprises, even really good, ones are awful to me.  I can hardly think of a single time that I really have ever enjoyed not knowing something that directly affected me.  Now, I understand that this is, in part, stemming from my personality. Even… Continue reading Why You Should Never Surprise A Spoonie

resources

10 Blogs You Should Be Reading If You Have An Autoimmune Disease

Information and community are key for people who are autoimmune messes.  We need information to help us understand and deal with our autoimmune problems as well as community and connection to help us through them.  The following ten blogs, in random order, are where I believe every autoimmune mess can find that. 1. Molly's Fund Blog… Continue reading 10 Blogs You Should Be Reading If You Have An Autoimmune Disease

Support, Uncategorized

Would You Rather Have A Visible or Invisible Illness?

I was recently asked a very difficult question.  The asker didn't mean for it to be difficult but it became so thought-provoking for me that I had to really take some time before I was sure of my answer.  The question was would you rather have a visible or invisible illness.  This question seems to… Continue reading Would You Rather Have A Visible or Invisible Illness?

Advocate, Support

Invisible Illness Awareness Week Count Down

7 Ways to Support a Loved One With Invisible Illness We are excitedly anticipating the arrival of Invisible Illness Awareness Week, and to celebrate we are counting down the top seven things you can do to support a loved one with an invisible illness.  The ever-terrific #2... If you love someone with an invisible illness then… Continue reading Invisible Illness Awareness Week Count Down