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Dealing With The Positivity Police

Dear healthy friend, Did you know that I struggle every day with being open and honest with you? As your friend, I want to share myself with you and develop an authentic friendship but my life revolves around my autoimmune disease.  Before you are quick to quote some mindless inspirational thought like, "you have it,… Continue reading Dealing With The Positivity Police

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Fighting Through Flares

I Do Not Look Sick

I do not look sick.  It is a blessing and a curse. Every day is a battle against my body but I look good doing it. This invisible illness, that my friends cannot name or understand, is slowly killing me. Being sick is bad but being invisible while you die is worse. Just like cancer,… Continue reading I Do Not Look Sick

Fighting Through Flares, Support

An Open Letter To My Healthy Friends About My “Flare-Up”

An open letter to my healthy friends, When I say flare-up, I think you understand that means my symptoms are worse.  In your health, I don't think you always fully comprehend the impact of what that means for me. Sometimes, I forget that not everyone lives in the world of chronic illness and speaks the… Continue reading An Open Letter To My Healthy Friends About My “Flare-Up”

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5 Good Things My Chronic Illness Taught My Children

  Chronic illness in a parent creates a unique dynamic between them and their children. Whereas in most homes, the parents are carrying the heaviest load in running the household, in chronic illness homes, the kids are forced to pick up a much more significant amount of that weight.  Despite the fact that the chronically… Continue reading 5 Good Things My Chronic Illness Taught My Children

About Autoimmune Disease, Advocate

12 Facts About Autoimmune Diseases That Will Make Your Hair Stand On End

1. Autoimmune disease has grown to be a bigger problem than cancer and heart disease. Collectively, autoimmune diseases are the most prevalent disease in the United States. According to the National Institutes of Health or NIH, 23.5 million Americans have an autoimmune disease. In comparison, cancer affects up to 9 million and heart disease up… Continue reading 12 Facts About Autoimmune Diseases That Will Make Your Hair Stand On End

Fighting Through Flares, Support

5 Ways to Fight the Invisible Illness Blues

Here are five ways to battle the invisible illness blues. You know that blah feeling that creeps up over you after your thoughts have been pretty down in light of all of the physical issues you are battling? It is what I refer to as the iib's or invisible illness blues. Anyone who has lived with… Continue reading 5 Ways to Fight the Invisible Illness Blues

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7 Memes of Sjogren’s Syndrome

When I was diagnosed as an autoimmune mess, the first name out of the autoimmune mix they identified was Sjogren's Syndrome.  Fortunately for me, I lived in a very tropical, humid environment.  This actually made the management of my symptoms pretty simple once I got a grasp on them.  However, I have recently moved to… Continue reading 7 Memes of Sjogren’s Syndrome

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What I Learned Loving A Spoonie

I realize that as spoonies, we do a lot of talking about what we need from the people around us to thrive.  I really wanted to take a look at what it is like for those who love us to try and meet those needs.  It's not easy being a spoonie, but it's also not… Continue reading What I Learned Loving A Spoonie

Support, Undiagnosed or Newly Diagnosed

7 Things to Remember When Your Diagnosis Scares You

  Sometimes when I think about my diagnosis, I get really scared.  It is never far from my conscious thought that as an autoimmune mess, my body is constantly moving towards failure.  I don't consider myself a pessimist, but when you face a scary diagnosis there is a harsh reality you cannot help but come… Continue reading 7 Things to Remember When Your Diagnosis Scares You