When I was 8 years old I was called out of fourth grade and into the principal's office. I sat nervously in the office full of large and intimidating furniture waiting to hear what I had done wrong. My principal, who later went on to supervise the district, flipped through a manila file folder with… Continue reading When Your Family Medical History Reads: X
Your doctor has finally put a name on the symptoms you've been experiencing and now you have to learn to adjust to life with an autoimmune disease. You've been told a few basics about your newly labeled disease and listened to the announcement that there is no cure. It may go up or down but… Continue reading 6 Tips For Adjusting To Life With An Autoimmune Disease
I realize that as spoonies, we do a lot of talking about what we need from the people around us to thrive. I really wanted to take a look at what it is like for those who love us to try and meet those needs. It's not easy being a spoonie, but it's also not… Continue reading What I Learned Loving A Spoonie
Sometimes when I think about my diagnosis, I get really scared. It is never far from my conscious thought that as an autoimmune mess, my body is constantly moving towards failure. I don't consider myself a pessimist, but when you face a scary diagnosis there is a harsh reality you cannot help but come… Continue reading 7 Things to Remember When Your Diagnosis Scares You
Your greatest gift usually hides behind your greatest fear. The problem is that you have to get past your fear to find it. Until recently, my greatest fears were relatively normal. They didn't involve ideas like losing cognitive function or not being able to control my autonomic nervous system. Incurable, progressive illness has a way of… Continue reading The Scary Way Brain Fog Steals Your Life
Being diagnosed with an incurable illness is shocking. It sort of sucks the breath out of you for a moment while you try to wrap your brain around exactly what that means for your life. In a way, diagnosis comes as a relief. It validates all of the suffering and fatigue that you've been trying… Continue reading Autoimmune Mess: You don’t get it till you get it!