About Autoimmune Disease, Advocate, autoimmune 101

Someone Needs To Clean Up This Autoimmune Mess

The autoimmune disease community is 9-50 million people and counting.  Well, as far as we can figure out because we really don't know for sure.  It's our best guess because no one knows the precise numbers.  The American Cancer Society can give you the exact number of malignant cancers diagnosed each year. The problem is… Continue reading Someone Needs To Clean Up This Autoimmune Mess

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Bet You Didn’t Know THIS About Autoimmune Mess

I thought I would share this article I published over on PatientWorthy.com for my followers.  It is my personal story of how I learned how to be a patient advocate.  It is a story of loss and heartache, and overcoming great odds to have the single greatest moment of my life.  Hope you enjoy it.

Being A Bad Patient Saved My Life

Part 2

Part 3

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Fighting Through Flares

I Do Not Look Sick

I do not look sick.  It is a blessing and a curse. Every day is a battle against my body but I look good doing it. This invisible illness, that my friends cannot name or understand, is slowly killing me. Being sick is bad but being invisible while you die is worse. Just like cancer,… Continue reading I Do Not Look Sick

newly diagnosed, Newly Diagonosed, Support, Undiagnosed or Newly Diagnosed

6 Tips For Adjusting To Life With An Autoimmune Disease

Your doctor has finally put a name on the symptoms you've been experiencing and now you have to learn to adjust to life with an autoimmune disease. You've been told a few basics about your newly labeled disease and listened to the announcement that there is no cure.  It may go up or down but… Continue reading 6 Tips For Adjusting To Life With An Autoimmune Disease

Fighting Through Flares, Treatment

PillSuite: The Suite Cure For Pill Problems

"I have been given this product as part of a product review through the Chronic Illness Bloggers (http://chronicillnessbloggers.com/chronic-illness-bloggers/) network. Although the product was a gift, all opinions in this review remain my own and I was in now way influenced by the company." Chronic illness means dealing with a load of pills a day.  … Continue reading PillSuite: The Suite Cure For Pill Problems

Fighting Through Flares, Treatment

4 Foods Making Your Lupus Worse (You won’t believe #2)

We all know that what we eat affects our health but did you know that there are foods that can make your lupus worse? Here are four foods that can trigger lupus flare-ups and make your symptoms worse. 1. Alfalfa Alfalfa seeds and sprouts contain a non-protein amino acid, L-canavanine.  L-canavanine has been known to produce… Continue reading 4 Foods Making Your Lupus Worse (You won’t believe #2)

About Autoimmune Disease, Advocate

Autoimmune Awareness Month: Spread Awareness Memes

To learn more about Autoimmune Disease start here or to learn about why we advocate start here. For more information on Sjogren's Syndrome visit The Sjogren's Syndrome Foundation.

Fighting Through Flares, Support

An Open Letter To My Healthy Friends About My “Flare-Up”

An open letter to my healthy friends, When I say flare-up, I think you understand that means my symptoms are worse.  In your health, I don't think you always fully comprehend the impact of what that means for me. Sometimes, I forget that not everyone lives in the world of chronic illness and speaks the… Continue reading An Open Letter To My Healthy Friends About My “Flare-Up”

About Autoimmune Disease, Advocate

Autoimmune Awareness Month: Spread Awareness Memes

To learn more about Autoimmune Disease start here or to learn about why we advocate start here. For more information on Lupus visit Lupus Foundation of America, Molly's Fund, or Know Lupus.